Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 01/09/2026

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 52 doctor with experience in Neurofibromatosis Type 1 (NF1) near Grand Rapids, MI. Of these, 16 are Experienced, 6 are Advanced and 3 are Distinguished.

    Location
    LocationClose
    52 providers found
      Bernard H. Eisenga
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Internal Medicine
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Internal Medicine

      Corewell Health Grand Rapids Hospitals Academic Medicine Associates - 275 Michigan St NE

      275 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      33+ years
      Languages Spoken:
      English
      Accepting New Patients

      Bernard Eisenga is a primary care provider, practicing in Internal Medicine in Grand Rapids, Michigan. Dr. Eisenga has been practicing medicine for over 33 years and is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Enlarged Liver, and Type 2 Diabetes (T2D). Dr. Eisenga is currently accepting new patients.

      Matthew R. Steensma
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Surgical Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Surgical Oncology

      Corewell Health Orthopedic Oncology - Lemmen-Holton

      145 Michigan Street Northeast, Suite 5500, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      24+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Matthew Steensma is a Pediatrics specialist and a Surgical Oncologist in Grand Rapids, Michigan. Dr. Steensma has been practicing medicine for over 24 years and is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Fibrosarcoma, Neurofibromatosis, Adult Soft Tissue Sarcoma, Bone Tumor, and Hip Replacement. Dr. Steensma is currently accepting new patients.

      Cynthia M. Hingtgen
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)

      Corewell Health Grand Rapids Hospitals Neurology - 275 Michigan St NE

      275 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      30+ years
      Languages Spoken:
      English

      Cynthia Hingtgen is a Neurologist in Grand Rapids, Michigan. Dr. Hingtgen has been practicing medicine for over 30 years and is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Relapsing Multiple Sclerosis (RMS), and Multiple Sclerosis (MS).

      Learn about our expert tiers
      Daniel R. Fain
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      34+ years
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Fain is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Fain has been practicing medicine for over 34 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is currently accepting new patients.

      Robin J. Cook
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      12+ years
      Languages Spoken:
      English

      Robin Cook is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Cook has been practicing medicine for over 12 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Tuberous Sclerosis.

      Albert S. Cornelius
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Corewell Health Grand Rapids Hospitals Pediatric Cancer Hematology - 35 Michigan St NE

      35 Michigan Street Northeast, Floor 2, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      44+ years
      Languages Spoken:
      English

      Albert Cornelius is a Pediatric Hematologist Oncology provider in Grand Rapids, Michigan. Dr. Cornelius has been practicing medicine for over 44 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Hereditary Spherocytosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Medulloblastoma.

      Julie A. Conley
      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Julie Conley is a Pediatrics provider in Grand Rapids, Michigan. Dr. Conley has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Legius Syndrome, RASopathies, Neurofibromatosis, and Marcus Gunn Phenomenon.

      Lauren E. Fletcher
      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      13+ years
      Languages Spoken:
      English

      Lauren Fletcher is a Pediatrics provider in Grand Rapids, Michigan. Dr. Fletcher has been practicing medicine for over 13 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Marcus Gunn Phenomenon, Gomez Lopez Hernandez Syndrome, and Legius Syndrome.

      Brooke E. Geddie
      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      21+ years
      Languages Spoken:
      English

      Brooke Geddie is a Pediatrics provider in Grand Rapids, Michigan. Dr. Geddie has been practicing medicine for over 21 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Microphthalmia Syndromic 9, Lenz Microphthalmia Syndrome, Micropthalmia Associated with Colobomatous Cyst, Marcus Gunn Phenomenon, and Vitrectomy.

      Corewell Health Pediatric Critical Care (PICU)

      100 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      19+ years
      Languages Spoken:
      English

      Benjamin Braun is a Pediatrics provider in Grand Rapids, Michigan. Dr. Braun has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Esophagitis, Chronic Inflammatory Response Syndrome (CIRS), Type 1 Diabetes (T1D), and Neurofibromatosis.

      Corewell Health Pediatric Hospitalists - Grand Rapids

      100 Michigan Street Northeast, Room 280, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      15+ years
      Languages Spoken:
      English, Spanish

      Andrea Hadley is a Pediatrics provider in Grand Rapids, Michigan. Her top areas of expertise are Malnutrition, Pertussis, Epilepsy in Children, Respiratory Syncytial Virus (RSV) Infection, and Gastrostomy.

      Corewell Health Pediatric Critical Care (PICU)

      100 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      20+ years
      Languages Spoken:
      English

      Rajat Pareek is a Pediatrics provider in Grand Rapids, Michigan. His top area of expertise is Neurofibromatosis Type 1 (NF1).

      Crystal M. Ritsema
      Experienced in Neurofibromatosis Type 1 (NF1)
      Internal Medicine
      Experienced in Neurofibromatosis Type 1 (NF1)
      Internal Medicine

      Corewell Health Grand Rapids Hospitals Academic Medicine Associates - 275 Michigan St NE

      275 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Crystal Ritsema is a primary care provider, practicing in Internal Medicine in Grand Rapids, Michigan. Dr. Ritsema has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Syndrome of Inappropriate Antidiuretic Hormone Secretion (SIADH), Type 2 Diabetes (T2D), Neurofibromatosis Type 1 (NF1), and Hypertension.

      Anne J. Weessies
      Experienced in Neurofibromatosis Type 1 (NF1)
      Physician Assistant
      Experienced in Neurofibromatosis Type 1 (NF1)
      Physician Assistant

      Corewell Health Orthopedic Oncology - Lemmen-Holton

      145 Michigan Street Northeast, Suite 5500, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anne Weessies is a Physician Assistant in Grand Rapids, Michigan. Ms. Weessies has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and RASopathies. Ms. Weessies is currently accepting new patients.

      Matthew G. Pridgeon
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Corewell Health Grand Rapids Hospitals Pediatric Cancer Hematology - 35 Michigan St NE

      35 Michigan Street Northeast, Floor 2, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English

      Matthew Pridgeon is a Pediatric Hematologist Oncology provider in Grand Rapids, Michigan. Dr. Pridgeon has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Sickle Cell Disease, Hereditary Spherocytosis, Hemoglobin SC Disease, and Acute Lymphoblastic Leukemia (ALL).

      Todd W. Vitaz
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurosurgery
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurosurgery

      Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

      275 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      31+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Todd Vitaz is a Neurosurgery provider in Grand Rapids, Michigan. Dr. Vitaz has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Pituitary Tumor, Awake Craniotomy, and Turbinectomy. Dr. Vitaz is currently accepting new patients.

      Stanley Sedore
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Cardiology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Cardiology

      Helen Devos Children's Hospital Congenital Heart Center Cvts-Grand Rapids

      25 Michigan St NE Ste 4200, 
      Grand Rapids,, MI 
       (0.9 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English

      Stanley Sedore is a Pediatric Cardiologist in Grand Rapids,, Michigan. Dr. Sedore has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Familial Dilated Cardiomyopathy, Short QT Syndrome, Postural Orthostatic Tachycardia Syndrome (POTS), and Brugada Syndrome.

      John W. Kemppainen
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Orthopedics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      19+ years
      Languages Spoken:
      English
      Accepting New Patients

      John Kemppainen is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Kemppainen has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Clubfoot, Legg-Calve-Perthes Disease (LCPD), Knock Knees, and Small Patella Syndrome. Dr. Kemppainen is currently accepting new patients.

      Casey J. Madura
      Experienced in Neurofibromatosis Type 1 (NF1)
      General Surgery
      Experienced in Neurofibromatosis Type 1 (NF1)
      General Surgery

      Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English

      Casey Madura is a General Surgeon in Grand Rapids, Michigan. Dr. Madura has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Lhermitte-Duclos Disease, Koolen De Vries Syndrome, CHARGE Syndrome, Pediatric Low-Grade Glioma (pLGG), and Craniectomy.

      Sharon H. Smith
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Corewell Health Grand Rapids Hospitals Pediatric Cancer Hematology - 35 Michigan St NE

      35 Michigan Street Northeast, Floor 2, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      41+ years
      Languages Spoken:
      English
      Accepting New Patients

      Sharon Smith is a Pediatric Hematologist Oncology provider in Grand Rapids, Michigan. Dr. Smith has been practicing medicine for over 41 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Hereditary Spherocytosis, Acute Lymphoblastic Leukemia (ALL), Febrile Neutropenia, and Cantu Syndrome. Dr. Smith is currently accepting new patients.

      Showing 1-20 of 52

      Last Updated: 01/09/2026

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near Grand Rapids, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Grand Rapids, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Grand Rapids, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Grand Rapids, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Grand Rapids, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Grand Rapids, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Grand Rapids, MI?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy