The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Grand Rapids, MI

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 52 doctor with experience in Neurofibromatosis Type 1 (NF1) near Grand Rapids, MI. Of these, 16 are Experienced, 7 are Advanced and 2 are Distinguished.

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52 providers found
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Surgical Oncology
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Surgical Oncology

    Corewell Health Orthopedic Oncology - Lemmen-Holton

    145 Michigan Street Northeast, Suite 5500, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Steensma is a Pediatrics specialist and a Surgical Oncologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 24 years. Dr. Steensma is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Fibrosarcoma, Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis, Adult Soft Tissue Sarcoma, and Hip Replacement. Dr. Steensma is board certified in American Board Of Orthopaedic Surgery. Dr. Steensma is currently accepting new patients.

    Distinguished in Neurofibromatosis Type 1 (NF1)
    Distinguished in Neurofibromatosis Type 1 (NF1)

    Corewell Health Grand Rapids Hospitals Neurology - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    30+ years
    Languages Spoken:
    English

    Cynthia Hingtgen is a Neurologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 30 years. Dr. Hingtgen is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Multiple Sclerosis (MS), and Relapsing Multiple Sclerosis (RMS). Dr. Hingtgen is board certified in American Board Of Psychiatry And Neurology.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology

    Helen DeVos Children's Hospital Hematology And Oncology

    100 Michigan Street Northeast, Floor 10, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    44+ years
    Languages Spoken:
    English
    Accepting New Patients

    Albert Cornelius is a Pediatric Hematologist Oncology provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 44 years. Dr. Cornelius is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Hereditary Spherocytosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Medulloblastoma. Dr. Cornelius is board certified in American Board Of Pediatrics, Pediatric Hematology-Oncology - 1992. Dr. Cornelius is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    34+ years
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Fain is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 34 years. Dr. Fain is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 84 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2016 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 1999. Dr. Fain is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    12+ years
    Languages Spoken:
    English
    Accepting New Patients

    Robin Cook is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 12 years. Dr. Cook is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Tuberous Sclerosis Complex. Dr. Cook is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2020 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2019. Dr. Cook is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Julie Conley is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 17 years. Dr. Conley is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 39 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Legius Syndrome, Esotropia, and RASopathies. Dr. Conley is board certified in American Board Of Ophthalmology.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    13+ years
    Languages Spoken:
    English

    Lauren Fletcher is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 13 years. Dr. Fletcher is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Astigmatism. Dr. Fletcher is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Advanced in Neurofibromatosis Type 1 (NF1)

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English

    Brooke Geddie is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 21 years. Dr. Geddie is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 47 other conditions, according to our data. Her clinical expertise encompasses Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy. Dr. Geddie is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Corewell Health Pediatric Critical Care (PICU)

    100 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English

    Benjamin Braun is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 19 years. Dr. Braun is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Esophagitis, Chronic Inflammatory Response Syndrome (CIRS), Type 1 Diabetes (T1D), and Neurofibromatosis. Dr. Braun is board certified in American Board Of Pediatrics and American Board Of Pediatrics.

    Pediatric Hematology Oncology | Family Medicine
    Pediatric Hematology Oncology | Family Medicine

    Helen DeVos Children's Hospital Hematology And Oncology

    100 Michigan Street Northeast, Floor 10, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    13+ years
    Languages Spoken:
    English
    Accepting New Patients

    Allison Close is a Pediatric Hematologist Oncology specialist and a Family Medicine provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 13 years. Dr. Close is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Acute Lymphoblastic Leukemia (ALL), Hereditary Spherocytosis, Febrile Neutropenia, and Congenital Athymia. Dr. Close is board certified in American Board Of Pediatrics, Pediatric Hematology-Oncology - 2021 and American Board Of Pediatrics, Pediatrics - 2016. Dr. Close is currently accepting new patients.

    Corewell Health Pediatric Hospitalists - Grand Rapids

    100 Michigan Street Northeast, Room 280, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    15+ years
    Languages Spoken:
    English, Spanish

    Andrea Hadley is a primary care provider, practicing in Pediatrics in Grand Rapids, Michigan. She has been practicing medicine for over 15 years. Dr. Hadley is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Diffuse Panbronchiolitis, Sepsis, Malnutrition, Pertussis, and Gastrostomy. Dr. Hadley is board certified in American Board Of Pediatrics, American Board Of Internal Medicine, and American Board Of Pediatrics.

    Corewell Health Pediatric Critical Care (PICU)

    100 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    20+ years
    Languages Spoken:
    English

    Rajat Pareek is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 20 years. Dr. Pareek is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Dr. Pareek is board certified in American Board Of Pediatrics and American Board Of Pediatrics.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery

    Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    31+ years
    Languages Spoken:
    English
    Accepting New Patients

    Todd Vitaz is a Neurosurgery provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 31 years. Dr. Vitaz is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Pituitary Tumor, Awake Craniotomy, and Turbinectomy. Dr. Vitaz is board certified in American Board Of Neurological Surgery. Dr. Vitaz is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Orthopedics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Orthopedics

    Corewell Health Pediatric Orthopedics - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 4150, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Kemppainen is a Pediatric Orthopedics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 19 years. Dr. Kemppainen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Clubfoot, Spondylocarpotarsal Synostosis Syndrome, and Caudal Regression Syndrome. Dr. Kemppainen is board certified in American Board Of Orthopaedic Surgery and American Board Of Orthopaedic Surgery. Dr. Kemppainen is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    General Surgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Casey Madura is a General Surgeon practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 18 years. Dr. Madura is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Chiari Malformation Type 2, Chiari Malformation, Chiari Malformation Type 1, Hydrocephalus, and Craniectomy. Dr. Madura is board certified in American Board Of Neurological Surgery.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology

    Corewell Health Grand Rapids Hospitals Pediatric Cancer Hematology - 35 Michigan St NE

    35 Michigan Street Northeast, Floor 2, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    41+ years
    Languages Spoken:
    English
    Accepting New Patients

    Sharon Smith is a Pediatric Hematologist Oncology provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 41 years. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Hereditary Spherocytosis, Acute Lymphoblastic Leukemia (ALL), Febrile Neutropenia, and Simpson-Golabi-Behmel Syndrome. Dr. Smith is board certified in American Board Of Pediatrics. Dr. Smith is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Orthopedics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Orthopedics

    Corewell Health Pediatric Orthopedics - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 4150, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    29+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jeffrey Cassidy is a Pediatric Orthopedics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 29 years. Dr. Cassidy is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, Osteotomy, and Spinal Fusion. Dr. Cassidy is board certified in American Board Of Orthopaedic Surgery. Dr. Cassidy is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    General Surgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English

    Marian Bercu is a General Surgeon practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 16 years. Dr. Bercu is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Dandy-Walker Syndrome, Syringomyelia, Chiari Malformation Type 2, Syringobulbia, and Deep Brain Stimulation.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Corewell Health Medical Oncology Program - Lemmen-Holton

    145 Michigan Street Northeast, Suite 5200, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    8+ years
    Languages Spoken:
    English
    Accepting New Patients

    Kaleigh Fetcko is a Neurologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 8 years. Dr. Fetcko is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Glioblastoma, Astrocytoma, Glioma, and Brain Tumor. Dr. Fetcko is board certified in American Board Of Psychiatry And Neurology. Dr. Fetcko is currently accepting new patients.

    General Surgery | Plastic Surgery
    General Surgery | Plastic Surgery

    Corewell Health Pediatric Craniofacial And Plastic Surgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5201, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Girotto is a General Surgeon and a Plastic Surgeon practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 32 years. Dr. Girotto is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Autosomal Cleft Palate, Goldenhar Disease, Cleft Lip and Palate, Osteotomy, and Bone Graft. Dr. Girotto is board certified in American Board Of Plastic Surgery. Dr. Girotto is currently accepting new patients.

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    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor near Grand Rapids, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Grand Rapids, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Grand Rapids, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Grand Rapids, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Grand Rapids, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Grand Rapids, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Grand Rapids, MI?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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