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    Last Updated: 10/30/2025

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    MediFind found 45 doctor with experience in Neurofibromatosis Type 1 (NF1) near Grand Rapids, MI. Of these, 13 are Experienced, 5 are Advanced and 2 are Distinguished.

    Location
    LocationClose
    45 providers found
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)

      Spectrum Health Primary Care Partners

      145 Michigan St Ne, 5500 Corewell Health Medic, 
      Grand Rapids, MI 
       (0.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Matthew Steensma is an Orthopedics provider in Grand Rapids, Michigan. Dr. Steensma is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Fibrosarcoma, Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis, Adult Soft Tissue Sarcoma, and Hip Replacement.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Pediatrics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Pediatrics

      Spectrum Health Primary Care Partners

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English

      Brooke Geddie is an Ophthalmologist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Geddie is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics
      35 Michigan St Ne, Suite 3003, 
      Grand Rapids, MI 
       (0.3 miles away)
      Languages Spoken:
      English

      Daniel Fain is a Pediatric Neurologist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Fain is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures.

      Learn about our expert tiers
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      35 Michigan St Ne Fl 2, 
      Grand Rapids, MI 
       (0.9 miles away)
      Languages Spoken:
      English

      Albert Cornelius is a Pediatric Hematologist Oncology provider in Grand Rapids, Michigan. Dr. Cornelius is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Hereditary Spherocytosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Medulloblastoma.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)

      Spectrum Health Primary Care Partners

      2750 E Beltline Ave Ne, Corewell Health Medical Gr, 
      Grand Rapids, MI 
       (5.1 miles away)
      Languages Spoken:
      English

      Cynthia Hingtgen is a Neurologist in Grand Rapids, Michigan. Dr. Hingtgen is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Multiple Sclerosis (MS), and Relapsing Multiple Sclerosis (RMS).

      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English

      Patrick Droste is an Ophthalmologist in Grand Rapids, Michigan. Dr. Droste is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Esotropia, Amblyopia, and Brown Syndrome.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Cardiology | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Cardiology | Pediatrics

      Spectrum Health Primary Care Partners

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English

      Stanley Sedore is a Pediatric Cardiologist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Sedore is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Familial Dilated Cardiomyopathy, Brugada Syndrome, Postural Orthostatic Tachycardia Syndrome (POTS), and Short QT Syndrome.

      Pediatric Cardiology | Pediatrics | Cardiology
      Pediatric Cardiology | Pediatrics | Cardiology
      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English

      Linda Pauliks is a Pediatric Cardiologist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Pauliks is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Idiopathic Dilatation of the Pulmonary Artery, Pulmonary Vein Stenosis, Bicuspid Aortic Valve, and Double Discordia.

      Pediatrics | Anesthesiology | Intensive Care Medicine
      Pediatrics | Anesthesiology | Intensive Care Medicine

      Spectrum Health Primary Care Partners

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English

      Benjamin Braun is a Pediatrics specialist and an Anesthesiologist in Grand Rapids, Michigan. Dr. Braun is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Esophagitis, Chronic Inflammatory Response Syndrome (CIRS), Type 1 Diabetes (T1D), and Neurofibromatosis.

      Advanced Radiology Services PC

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English

      Christopher Therasse is a Radiologist in Grand Rapids, Michigan. His top areas of expertise are Headache, Herniated Disk, Vertigo, and Subarachnoid Hemorrhage.

      Advanced Radiology Services PC

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Experience:
      36+ years
      Languages Spoken:
      English

      Joseph Junewick is a Radiologist in Grand Rapids, Michigan. His top areas of expertise are Septo-Optic Dysplasia, Corpus Callosum Dysgenesis Hypopituitarism, Marshall-Smith Syndrome, and Fractured Spine.

      Radiology | Pediatric Radiology
      Radiology | Pediatric Radiology

      Advanced Radiology Services PC

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English

      Matthew Christy is a Radiologist and a Pediatric Radiologist in Grand Rapids, Michigan. His top area of expertise is Neurofibromatosis Type 1 (NF1).

      Advanced Radiology Services PC

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English

      Joseph Schulte is a Radiologist in Grand Rapids, Michigan. His top areas of expertise are CAPOS Syndrome, Optic Glioma, Subarachnoid Hemorrhage, and Headache.

      Advanced Radiology Services PC

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English

      Stefan Margiewicz is a Radiologist in Grand Rapids, Michigan. His top areas of expertise are CAPOS Syndrome, Aseptic and Alopecic Nodules of Scalp (AANS), Headache, and Subarachnoid Hemorrhage.

      Pediatric Radiology | Radiology
      Pediatric Radiology | Radiology

      Advanced Radiology Services PC

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English

      Jamie Frost is a Pediatric Radiologist and a Radiologist in Grand Rapids, Michigan. Her top areas of expertise are Congenital Giant Megaureter, Bronchogenic Cyst, Periventricular Heterotopia, Focal or Multifocal Malformations in Neuronal Migration, and Aortic Valve Replacement.

      Plastic Surgery | Hand Surgery
      Plastic Surgery | Hand Surgery
      35 Michigan St Ne Ste 5201, 
      Grand Rapids, MI 
       (0.3 miles away)
      Languages Spoken:
      English

      John Girotto is a Plastic Surgeon and a Hand Surgeon in Grand Rapids, Michigan. Dr. Girotto is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Autosomal Cleft Palate, Pierre Robin Sequence, Goldenhar Disease, Osteotomy, and Bone Graft.

      Nurse Practitioner
      Nurse Practitioner
      35 Michigan St Ne Ste 1800, 
      Grand Rapids, MI 
       (0.3 miles away)
      Languages Spoken:
      English

      Irene Mckenzie is a Nurse Practitioner in Grand Rapids, Michigan. Her top areas of expertise are Sunken Fontanelles, Baller-Gerold Syndrome, and Neurofibromatosis Type 1 (NF1).

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Orthopedics | Orthopedics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Orthopedics | Orthopedics
      35 Michigan St Ne, Suite 4150, 
      Grand Rapids, MI 
       (0.3 miles away)
      Languages Spoken:
      English

      John Kemppainen is a Pediatric Orthopedics specialist and an Orthopedics provider in Grand Rapids, Michigan. Dr. Kemppainen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Scoliosis, Clubfoot, Spondylocarpotarsal Synostosis Syndrome, and Caudal Regression Syndrome.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Physician Assistant
      Experienced in Neurofibromatosis Type 1 (NF1)
      Physician Assistant

      Spectrum Health Primary Care Partners

      145 Michigan St Ne, 5500 Corewell Health Medic, 
      Grand Rapids, MI 
       (0.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Anne Weessies is a Physician Assistant in Grand Rapids, Michigan. Ms. Weessies is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and RASopathies.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      100 Michigan St Ne, 
      Grand Rapids, MI 
       (0.4 miles away)
      Languages Spoken:
      English

      Rebecca Loret is a Pediatric Hematologist Oncology provider in Grand Rapids, Michigan. Dr. Loret is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Optic Glioma, Glioma, Medulloblastoma, and Hereditary Spherocytosis.

      Showing 1-20 of 45

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near Grand Rapids, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Grand Rapids, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Grand Rapids, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Grand Rapids, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Grand Rapids, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Grand Rapids, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Grand Rapids, MI?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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